“At my 20-week ultrasound, I found out that my baby was a little boy—and that his heart wasn’t functioning correctly. He had his first heart surgery at 5 days old! The staff and physicians with the Pediatric Heart Program have been absolutely amazing; they let me do what I needed to do to take care of him, but they were always right there if I needed them.”
—Amanda Major, mom to Jaxson, 6 months old, diagnosed with hypoplastic left heart syndrome
Our Pediatric Heart Program understands the fear and uncertainty you feel as a parent of a baby with a congenital heart defect. That’s why our experienced fetal cardiology program is designed to support you and your family every step of the way:
Our fetal and perinatal coordinator is here for you
Your coordinator serves as your main heart contact throughout your pregnancy.
Our family-centered focus starts literally from the ground up
Our program is the only one in the state where the neonatal intensive care unit is located just steps away from our labor and delivery center, so you can visit as often as you are able after birth and during your baby’s treatment.
Our NICU is the best in the region
Our Level IV NICU offers the highest level of care available, including the region’s largest team of neonatologists.
Our experience is second to none
Our comprehensive fetal cardiology program has decades of experience in diagnosing and caring for pediatric congenital patients.
What to Expect
If your ob/gyn suspects a congenital heart defect due to a family history or because of a suspicious ultrasound, ask to be referred to our care team. We are able to diagnose heart defects in utero (prior to birth).
Treatment starts with a fetal echocardiogram (typically during the second trimester) to confirm the diagnosis.
Depending on the type and complexity of the heart defect, we may plan for you to deliver at our labor and delivery center.
Team Management and Care Planning
If a heart defect is confirmed, your pregnancy will be managed by a maternal-fetal medicine specialist alongside our pediatric cardiologists. Our multidisciplinary team also includes fetal cardiologists, cardiothoracic surgeons, pediatric cardiothoracic anesthesiologists, neonatal and pediatric intensivists, nurse practitioners, physician assistants and more. This team works closely with families to develop and communicate a detailed care plan. In addition, our program holds a multidisciplinary family meeting at about 32 to 35 weeks of pregnancy: Your family will meet with the entire care team to review the plan and discuss any questions.
Your child will most likely be transferred to our NICU and may remain here until discharge or surgery. If your child needs surgical intervention, your child will be transferred to the PICU for post-operative care.
Depending on the diagnosis, your child may require only one surgery or a series of surgeries. Ongoing medical management may also be needed. After any initial procedures, your child will continue to receive follow-up care at our pediatric cardiology clinic, where your pediatric cardiologist will continue to provide ongoing care management and surgery referrals if needed.
Your Care Team
Zahid Amin, MD
William Lutin, MD
Kenneth Murdison, MD
Henry Wiles, MD